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April 2021: New Documents from USA Clinicians' Coalition
Recommendations for medical providers for ME/CFS testing and for treatments
March 2021: Responses to the COVID Vaccine Effects Survey: Astra Zeneca Vaccine
Some observations from patients being vaccinated against COVID-19.
November 2020: Post-exertional Malaise and COVID 19
EMECC member Dr Eva Martin on why post-exertional or exercise intolerance should be explored in all patients with persistent COVID.
October 2020: Something Changing in the State of Denmark?
EMECC member Dr Jesper Mehlsen has been involved in the treatment of a young Danish woman with ME. The results of his work may see a sea change in treatment of ME patients in other Danish municipalties.
July 2020: Research Partners: Persistent COVID 19 and ME / CFS?
EMECC member Dr Eva Martin on why ME researchers would be best qualified to study persistent COVID 19.
July 2020: Case Report: Severe ME in Children
EMECC member Dr Nigel Speight's article on managing and advising on numerous cases of severe paediatric ME, with a series of case reports of individual cases as a means of illustrating various points regarding clinical presentation, together with general principles of appropriate management.
February 2020: News of new Clinicians Workshop
An International Clinicians Workshop is a new event to improve clinical knowledge.
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February 2020 - EMERG and EMECC Steering Group meets
The new EMERG/EMECC Steering Group meets to plan future collaborative work.
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January 2020 - The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample
The prevalence of pediatric #mecfs 0.75%, a higher percentage being African American and Latinx than Caucasian. Less than 5% had been previously diagnosed with the illness. Jason, L.A., Katz, B.Z., Sunnquist, M. et al. Child Youth Care Forum (2020).
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August 2019 - USA ME CC Diagnosis/Treatment Guide
The USA ME Clinicians Council publishes Diagnosing and Treating - MYALGIC ENCEPHALOMYELITIS/ CHRONIC FATIGUE SYNDROME (ME/CFS)
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June 2019 - EMECC to present at EAN Congress
Members of the The European ME Alliance (EMEA) have been working with European Federation of Neurological Associations (EFNA) to set up an awareness day for ME at the upcoming European Academy of Neurology Congress in Norway.
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April 2019 - EMECC Statement
The following statement was issued by the European ME CLinicians Council following the inaugural workshop in London in February 2019
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February 2019 - Inaugural meeting of EMECC
The inaugural meeting of EMECC took place in London in February 2019
Read MoreNews Items 2023
News from EMERG member - Professor Dr Branislav Milovanović from Serbia - regarding a new symposium.
New members of EMERG are announced and an update on the EMERG application for EU Horizon funding for research into high burden, under-researched diseases - ME
New paper from Professor Maureen Hanson of Cornell University, USA.
The viral origin of myalgic encephalomyelitis/chronic fatigue syndrome
Videos from the recent 15th International ME Conference organised by UK charity Invest in ME Research are available here
UK charity Invest in ME Research and EMERG announce the resumption of the European young/early career researcher network - Young EMERG. An additional event is now planned for International ME Conference Week for the group to meet, along with early career investigators from other countries and continents.
A full EMERG meeting will take place prior to the 12th Invest in ME Research Biomedical Research into ME Colloquium at the Wellcome Genome Campus in UK in May. EMERG will have new participants who will also be joining the meeting.
News Items 2022
EMERG members have collaborated in HPV research and the following paper has now been published -
Autoimmunity in patients reporting long-term complications after exposure
to human papilloma virus vaccination
Several EMERG researchers were involved in this paper - including EMERG co-chair Dr Jesper Mehlsen.
EMERG member Anders Rosén was a participant in the recently published paper -
Saliva antibody-fingerprint of reactivated latent viruses after mild/asymptomatic COVID-19 is
unique in patients with myalgic-encephalomyelitis/chronic fatigue syndrome
In June 2021 at UK charity Invest in ME Research's tenth annual International Biomedical Research into ME Colloquium
(#BRMEC10) ME researchers from around the world met up to discuss research, both past and current,
The agenda was created with the help of The European ME Research Group
and was developed to test popular hypotheses that explain the aetiology of ME.
These included: immunogenetics and dysfunctional immune responses; an abnormal autonomous nervous system
and autoimmunity; mitochondrial metabolic dysfunction; and altered host-microbe (commensal and pathogen)
interactions.
A paper has been published that summarises discussions in one of the hypotheses from one of the Colloquium
sessions - that immune dysfunction and viral factors may drive the development and progression of ME.
EMERG member Hanna Ollila has been granted an award from the Academy of Finland for research into ME.
This was one of 22 new Academy Research Fellows selected in biosciences, health and environmental research.
The selections emphasised the high scientific quality of the projects and international research cooperation.
EMERG will again play a major role in the annual international research Colloquium organised by UK charity
Invest in ME Research. This year will be the 11th Colloquium - #BRMEC11.
EMERG will be chairing sessions in the Colloquium.
News Items Archived
EMERG member from Spain, Professor Elisa Oltra, presented at the #BRMEC10 Colloquium recently. The Gene Expression and Immunity research group of the Faculty of Medicine and Health Sciences of the Catholic University of Valencia (UCV), where Elisa is the principal investigator, recently discussed her work and that of UCV research group member Karen Giménez.
Researchers in Bergen suggest that ME can be linked to a failure in the energy supply to the cells.
They compared blood samples from patients with ME and a control group.
Researchers at the University of Bergen and Haukeland University Hospital, among others, have found differences in blood samples from ME patients and healthy people.
EMERG played a major part in the recent 10th Invest in ME Research International Biomedical Research into ME Colloquium #BRMEC10
that was held recently.
The main part of the agenda was formulated by EMERG in collaboration with the UK charity.
A report will be available from the Invest in ME Research web site. More information will be in the EMERG site in due course.
A proposed research agenda has been submitted to the Dutch Minister of Health and includes research funding of € 20-29½ million over 10 years for a biomedical research program.
The prevalence of pediatric #mecfs 0.75%, a higher percentage being African American and Latinx than Caucasian. Less than 5% had been previously diagnosed with the illness. Jason, L.A., Katz, B.Z., Sunnquist, M. et al. Child Youth Care Forum (2020).
The USA ME Clinicians Council publishes Diagnosing and Treating - MYALGIC ENCEPHALOMYELITIS/ CHRONIC FATIGUE SYNDROME (ME/CFS)
Members of the The European ME Alliance (EMEA) have been working with European Federation of Neurological Associations (EFNA) to set up an awareness day for ME at the upcoming European Academy of Neurology Congress in Norway.
From Sweden - From Ewa Wadhagen Wedlund reg. occupational therapist, med.lic. ME/CFS center Stora Sköndal, Sweden
The following statement was issued by the European ME CLinicians Council following the inaugural workshop in London in February 2019