Building a European Strategy of Biomedical Research into ME
The European ME Research Group (EMERG) is a network of European ME researchers and researcher-clinicians who formed to collaborate and share knowledge in research into myalgic encephalomyeltis (ME).
The group is creating a strategy of high-quality, coordinated biomedical research that will allow accumulation of data based on
sharing of experiences and knowledge,
and will assist in expanding capacity of research leading to progress in developing a rapid pathway to discovering the cause(s) of,
and treatment(s) for, ME.
In addition the group is creating the infrastructure for joint European research into ME.
Who is Involved
The building of new research and the accumulation of shared data based on collaboration
and experiences allows rapid progress in the building of a base of European fundamental research into ME.
The lack of funded and sustained biomedical research means that no one country has applied
sufficient resources to perform research into ME.
By collaborating across Europe we can harness the best talents from the best institutions who are intent on working together as well as increase the capacity of research being undertaken.
Researchers from the major European institutes who conduct biomedical research into ME are involved in EMERG and the group collaborates with the clinicians in the European ME Clinicians Council (EMECC) and with European ME patient groups and charities within the European ME Alliance (EMEA) to provide a powerful combination of high-quality research, clinical expertise and patient participation.
EMERG research areas are being identified within a strategy of planned research.
In EMERG the following research is already occurring or planned:-
In Denmark immunological and mitochondrial research is being performed
In Finland sleep and autonomic studies and genome wide studiesare being performed.
In Norway genetics research is being performed as well as metabolomics and a clinical trial. Prospective epidemiological studies are proposed.
In Spain there is research on cell and molecular biology and in Sweden research is in the areas of imaging and biomarker discovery.
In UK a research programme has been established to understand the links between ME and the population of microbes that colonise the gut. A planned clinical trial will transplant the microbiota from healthy donors into participants with ME. A Centre of Excellence for ME is firmly established and there is research into causes and mechanism of ME.
In Iceland infrastructure for ME research is being set up.
As part of the EMERG strategy joint research project between different members have been created and applications for funding have been made.
Read more on EMERG projects.
A summary of recent and planned events in which EMERG will participate.
These included workshops and conferences.
The expertise of EMERG members means that the group can be a powerful influence when research expertise is required to determine correct research strategy into ME is required in Europe.
Part of the remit of EMERG will be to provide a strategy of research for ME in order to uncover treatmens and c auses.