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What name is given to the disease?

ME/CFS by patients
CFS officially


Estimated numbers of patients

10,000

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Status of recognition

CFS/ME is classified as a psychiatric disorder by most of the doctors and they tend to treat it with antidepressants and graded exercise therapy (GET) which are potentially very harmful to patients and may permanently worsen their condition.
Fortunately for the patients even these harmful therapies seem unavailable as there are no experts to even carry out GET-therapy.
Patients are totally left without any care.


Specialism used to treat ME

No data

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Average time before diagnosis

No data


Guidelines used

Duodecim produced new guidelines in 2018 - see here

guidelines

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Disability status of patients

The patients are not eligible for social security and illness based benefits which are offered by The Finnish Social Insurance Institution (KELA) and insurance companies.
According to the Social Insurance Institution there is no medical reason for their disability and therefore the patients are considered as ‘unemployed but disabled’.


Other Observations

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