What name is given to the disease?
Estimated numbers of patients
Some associations mention a figure of the 400,000 but there hasn't been any epidemiological studies
Status of recognition
The general opinion is misinformed.
Many political representatives are not aware of the disease and if they arethen many think
it is the same as fibromyalgia.
Doctors are dangerously condescending about ME/CFS.
There is a lack of willingness for doctors to learn the difference between ME and chronic fatigue,
assuming it is another symptom of fibromyalgia and a psychosomatic condition.
Specialism used to treat ME
none
Average time before diagnosis
There are doctors who diagnose chronic fatigue or chronic fatigue syndrome but it can take years.
Guidelines used
The Netherlands is very much like the UK as ther guidelines are based on the NICE guidelines and influenced by the PACE trial.
Disability status of patients
tbc
Other Observations
tbc
